I just had a nice long conversation with Pamela. There is mostly good news with some confusing news.
To get the confusing and more minor news out of the way, Pamela has been given (without any consultation) two new roommates. Neither of them speak English and neither seem to want to try to communicate. They want lights off at 9pm which means Pamela can’t read or talk on the phone or work on her laptop and she is pretty upset. She is also worried about the safety of her “stuff”. Though I suspect that it is safe, I understand her concern because in Kenya it would be up for grabs.
I “advised” her to talk to her care coordinator. That’s why she is there and it is good for Pamela to address these things directly. Her coordinator can explain and at least will be aware of Pamela’s feelings about all this. So it would be good if something could be changed, even if it is only to move into understanding and out of misunderstanding.
On to the really good news….the bacterial infection is gone!! They got 3 negative cultures back and Angel is pronounced clean. In fact, they allowed Pamela to put her in her stroller and walk her outside, across the street to UTMB offices to see the nutritionist. Pamela said it was wonderful to be outside walking her baby down the sidewalk just like any other mom.
And the nutritionist had some good ideas about feeding. While she was in the office, they got Angel to stop biting Pamela by taking her off the breast when she bit and giving her the pacifier. Once she spit out the pacifier, Angel was put back to the breast, and it wasn’t long before she nursed more and bit less. Smart girl, our Angel!
She also tried her on the sippy cup and she drank from that as well. They are also giving her solids and she is taking those. Definite progress. They still have her on the feeding tube but it looks like we are moving off it very soon.
Tomorrow (Friday) the surgery on the eyelids (both of them) will happen at 10:00 am. It was supposed to happen today, but the operating room schedule was too full. The surgeon explained to Pamela that Angel’s eyes are the primary concern and the other surgeries will come but it will take many months. They still can’t give us any time frame.
So we trust the expertise that is surrounding this child and mother, and we trust God who has lead us to this point and who will unquestioningly lead us on day by day. We worship a healing God who is active and at work unceasingly. There is nothing to fear and much to hope for.
Stay close and send prayers. You are with us on this journey.